The daily stressors associated with providing care can often lead health care professionals (HCPs) to feel emotional exhaustion, decreased empathy, reduced effectiveness, decreased work-related fulfillment and a lack of accomplishment. This activity will provide HCPs with individual and organizational strategies to increase resilience (the ability to cope with and recover from difficult experiences) and proactively respond to challenging situations, both of which can improve mood and mental health and increase joy and satisfaction in daily health care practice. It will also describe individual and team-related traits necessary to develop resiliency and discuss preventive measures to counteract burnout.

In this podcast Nealie White, an individual with Pomp disease, will share her insights and perspectives, and panelists will provide strategies that the interprofessional health care team can utilize to better support people who are impacted by rare diseases.

This activity will explore recent advances in the diagnosis and treatment of Pompe disease and other LSDs, including current clinical trials. It will also share insights and perspectives from and provide strategies to support the well-being of both the individual and their family/caregiver(s) and highlight the role of the interprofessional team in evaluating and improving care for patients with these conditions.

This activity will examine how the multiple aspects of digital health can be best utilized by health care team members to ensure continuity of the patient’s health care journey, meet care plan goals, improve patient outcomes and optimize team communication practices. The ability of virtual health care practices to enable team members to fulfill their roles in clinical decision-making and care plan implementation will be discussed. Important legal, regulatory and reimbursement considerations that pertain to digital practice integration within the health care team will be highlighted.