This presentation addresses the needs for improved access to care, new advances in rare-disease diagnosis, and treatments emerging with the rise of personalized precision medicine. New possibilities for collaboration among medicine, research and drug-development organizations are also discussed.

This activity will provide learners with an overview of clinical considerations in adults with IDD and improve communication skills and practices that can better guide treatment choices to address the specific needs of these individuals. Learners will take a closer look at existing bias, stigma and discrimination toward these individuals and learn strategies to address these issues in practice. Lastly, the value of improved interprofessional team collaboration between health care professionals (HCPs), caregivers and direct support professionals will be discussed.

This activity will discuss emerging therapies for DMD and the importance of incorporating a personalized interprofessional care plan, along with the role of health disparities and how these impacts access to care and outcomes for these individuals.

This activity will focus on the connection between SDoH and how they may impact access to care, treatment and health outcomes for children with rare and CMC. Learners will be provided with strategies and resources that can address these negative effects. The importance of access to personalized care that they require to live their healthiest lives will be addressed.