The Diagnostic Odyssey for Individuals With Rare Diseases: Leukodystrophies
Patient and doctors stand near the entrance to a circular maze.
This activity will explore recent advances in the diagnosis and treatment of leukodystrophies, including current clinical trials. It will also share insights and perspectives from individuals and their family/caregiver(s) and provide strategies to support their well-being.
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 ASWB - Social Workers
The Diagnostic Odyssey for Individuals With Rare Diseases: Spotlight on the Caregiver, Leukodystrophies (Podcast)
Patient and doctors stand near the entrance to a circular maze.
Living with a rare disease impacts individuals and their family/caregivers, both physically and mentally. This podcast will share insights and perspectives directly from Erica Barnes and provide strategies that the interprofessional health care team can utilize to better support those impacted by rare diseases such as leukodystrophies.
Category
  • Disease management
  • Health equity
  • Rare diseases
Format
  • Podcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 ASWB - Social Workers
Across the Sexual Orientation and Gender Identity Spectrum: A Call to Action
This activity will provide health care providers with increased awareness surrounding these issues so that communication with LGBTQ+ people is respectful and sensitive. It will review how patient-provider interactions can be more supportive of the individual’s needs, how to take a full history and perform an inclusive and affirming physical exam, and how health information can be thoughtfully documented to provide accurate information regarding health issues, screening recommendations and risk prevention.
Category
  • Health equity
Format
  • Online Education
Credits
  • 1.00 AAFP - Family Physicians
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 COPE - Optometrists
  • 1.00 ASWB - Social Workers
Finding Your Joy in Practice Again
This activity will help HCPs and leaders learn the signs to look for, how to communicate about such feelings and how to develop organizational and individual strategies to find joy in practice once again.
Category
  • Behavioral health
  • Wellness
Format
  • Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 ASWB - Social Workers
The Challenging Journey to Diagnosis: A Personal Experience Panel
This presentation exams the challenges surrounding rare-disease diagnosis and treatment, delving further into the significant impact of the diagnostic odyssey on adults, children, and their families as they seek care for their rare conditions. A panel of individuals speak about the challenges of their own rare-disease odysseys and provide insight into the pronounced effects their prolonged and necessary diagnostic pursuits have had on their personal lives, finances, and physical and mental health.
Category
  • Disease management
  • Rare diseases
Format
  • Webcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 CDR - Dietitians
  • 0.75 ASWB - Social Workers
What’s Special about Specialty Pharmacy?
This session examines the cost of development and growth of these pharmaceuticals and details the specific role that specialty pharmacy plays in making these products accessible. The high costs of therapies and patient and medication management are also discussed along with the role and value of drug benefit programs.
Category
  • Disease management
Format
  • Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 CDR - Dietitians
  • 1.00 ASWB - Social Workers
Transition of Care: Our Patients Are Growing Up
This activity provides a thorough understanding of the recommended health care transition (HCT) components, considerations and goals that should be constant across HCT planning. It discusses the importance of coordinating the efforts of the health care team, adolescent and family to ensure continuity of care, positive health outcomes, and optimal quality of life.
Category
  • Disease management
  • Pediatrics
Format
  • Webcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 CDR - Dietitians
  • 0.75 ASWB - Social Workers
Successes, Challenges and Emerging Opportunities of CAR T-Cell Therapy
This session discusses CAR T-cell therapy, its current trends, along with the challenges and costs, and what the future may hold for emerging treatment for various conditions.
Category
  • Disease management
  • Oncology
Format
  • Webcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 CDR - Dietitians
  • 0.75 ASWB - Social Workers
Obesity Care: Identifying Challenges and Inequities that Impact Health Outcomes
Obesity, a major health concern that now affects over 40 percent of the U.S. population, is highly influenced by multiple factors and social determinants of health (SDOH), including disparities in health care access, morbidity and mortality rates, health behavior, and multiple risk factors. Diagnostic disparities may also exist: data on body mass index (BMI) thresholds — used in diagnosis and metabolic and cardiovascular evaluation — indicate variations in specific race/ethnicity and gender subgroups that may not be incorporated in current practice. These disparities and how they are currently being addressed are discussed during this session, as well as the prevalence of obesity and concomitant conditions such as heart disease, diabetes, and cancer among populations of varying age, sex, race/ethnicity, and SDOH.
Category
  • Behavioral health
  • Disease management
  • Health equity
  • Wellness
Format
  • Webcasts
Credits
  • 0.75 ACPE - Pharmacists
  • 0.75 ACPE - Pharmacy Technicians
  • 0.75 AMA - Physicians
  • 0.75 ANCC - Nurses
  • 0.75 APA - Psychologists
  • 0.75 Attendance - General Attendance
  • 0.75 CCMC - General - Case Managers
  • 0.75 CDR - Dietitians
  • 0.75 ASWB - Social Workers
Maintaining the Momentum of Telehealth Expansion
This session provides an overview of the current state of telehealth, future capabilities and how utilization may influence health care team practices on multiple levels.
Category
  • Digital health
  • Disease management
  • Wellness
Format
  • Webcasts
Credits
  • 1.00 ACPE - Pharmacists
  • 1.00 ACPE - Pharmacy Technicians
  • 1.00 AMA - Physicians
  • 1.00 ANCC - Nurses
  • 1.00 APA - Psychologists
  • 1.00 Attendance - General Attendance
  • 1.00 CCMC - General - Case Managers
  • 1.00 CDR - Dietitians
  • 1.00 ASWB - Social Workers

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