This podcast will share insights and perspectives directly from Diane Bomberg and provide strategies that the interprofessional health care team can utilize to better support those impacted by rare diseases such as lymphangiomatosis.

This activity will highlight new updates in our understanding of how diabesity develops and describe the negative physiologic effects of this disease on multiple body systems, notably the cardiovascular and renal systems. Optimal treatments for diabesity will be identified, along with an overview of the health burden of diabesity related to long-term complications and reduced function, quality of life and life expectancy. 

The daily stressors associated with providing care can often lead health care professionals (HCPs) to feel emotional exhaustion, decreased empathy, reduced effectiveness, decreased work-related fulfillment and a lack of accomplishment. This activity will provide HCPs with individual and organizational strategies to increase resilience (the ability to cope with and recover from difficult experiences) and proactively respond to challenging situations, both of which can improve mood and mental health and increase joy and satisfaction in daily health care practice. It will also describe individual and team-related traits necessary to develop resiliency and discuss preventive measures to counteract burnout.

In this podcast Nealie White, an individual with Pomp disease, will share her insights and perspectives, and panelists will provide strategies that the interprofessional health care team can utilize to better support people who are impacted by rare diseases.